My Fibroid story…


Fibroid:  a benign tumor that consists of fibrous and muscular tissue and occurs especially in the uterine wall…

  • Symptoms: heavy prolonged periods, painful periods, pain in the abdomen, pelvis or low back, bloating and feelings of abdominal pressure, frequent urination…

I recently found out that I have 3 uterine fibroids. I had no idea about them until I got pregnant. Actually I found out I was pregnant because of the excruciating pain of the fibroids but had no idea what was happening!

One of my fibroids is the size of a grapefruit and the other 2 are the sizes of small oranges. Many women have fibroids and live with them without knowing. I’ve had some questions on what fibroids are and how I found out that I had them. Well here’s my story…

At the beginning of my pregnancy I was in terrible pain with lower abdominal cramping. I thought…

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Just so you know TOTAL hysterectomy is …

This hopefully clears up any confusion! I know I have to explain this often to people who ask. I often find it just easier to say that I had my uterus and cervix removed as most people assume total means ovaries as well. I think this explores a deeper issue though. I think as a society we have little understanding of ‘lady parts’ and what those parts do. I know I did…until I needed to learn it due to my medical ‘issues’. I think it would be so much easier if we were talking about these things on a regular basis, not just when complications arise.

da Vinci Total Hysterectomy

Many times while talking to people and patients I will hear them talk about total hysterectomy.  When I ask them what their definition of total hysterectomy is many of them tell me, “It’s when the uterus, tubes and ovaries get taken out — everything.”

Before we go any further NO NO NO NO NO NO and more NO.

Total hysterectomy is when the uterus — ALL of the uterus is taken out — the total uterus which includes the cervix; this does NOT include the ovaries or the tubes.  The ovaries and the tubes are NOT part of the uterus.  The cervix is part of the uterus.  They may all be friends, or in some cases enemies, but they are different things … and although the uterus and friends may all be removed at one time, like a package deal, they are individuals.

If you are talking about EVERYTHING…

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Decision Making … Hysterectomy

Settle in – this is a long one, but well worth it! Find out more about why women have a hysterectomy (mine was covered in the first 2 as well as the emergency aspect) and what some of the emotional and physical impacts might be.

da Vinci Total Hysterectomy

Of course hysterectomies are chosen and performed for numerous different reasons.

  • Menorrhagia and dysfunctional uterine bleeding — This seems to be one of the most common reasons in my experience as a nurse working in the surgical field.  The continued bleeding often leads to anemia that often leads to indescribable continuous fatigue.  Huge clots can be passed with this bleeding as well.  Post-menopausal bleeding also falls within this category.  The next condition often goes hand-in-hand with heavy vaginal bleeding.
  • Fibroids — These can cause pelvic, abdominal and low back pain.  Uterine fibroids can interfere with the ability to get pregnant, can put pressure on the bladder and sometimes if the fibroids are large enough give a woman an appearance of being pregnant.  This in itself can be bothersome if people are asking if you’re pregnant and your only answer is that you have fibroids.  Uterine and cervical polyps can act…

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Pain just got harder.

da Vinci Total Hysterectomy

There is a new law going into effect October 6th, 2014 regarding hydrocodone making it a schedule II drug up from a schedule III.  Now a triplicate handwritten prescription from the prescriber, usually a physician, will be required … and there won’t be refills unless you see the doctor again in person.

All I can say is I’m glad I had my pain when I had my pain because relief is going to become a whole lot harder to come by.  While I used Tylenol #3 (acetaminophen with 30 mG of codeine) for my painful periods, there are many women who use hydrocodone (brand names Vicodin or Norco) because they can’t tolerate codeine.  Oddly enough when I had my uterus, pre-hysterectomy, I could not tolerate hydrocodone — it made me very, very nauseous … sometimes with vomiting.  But voila out comes my uterus and I can tolerate hydrocodone without problems…

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Get near my head, hold my hand, and talk to me

In order to deal with the crazy heavy bleeding I was having prior to my hysterectomy, one of the options I was considering was an IUD, most likely Mirena. I was kind of intimidated by the process but it did sound like an option I should at least try before the more extreme option of a hysterectomy. Of course, my body had other ideas, and I ended up having an emergency hysterectomy before I could even try an IUD! However, here is one woman’s account of her recent experience with Mirena.

20 Weeks Pregnant (But Actually Not)

Ah, yes, our dear friend, fibroids! I have said it before but I will say it again..and again…and then some more! I think it is crazy that this topic is not discussed more often. I had not heard of fibroids and the problems they can cause until several years into dealing with some of their horrible symptoms. This needs to change!

Not finding myself, but creating myself

My name is Danielle and I have fibroids.

Fibroids are benign tumours which are sensitive to an excess of oestrogen, and grow in or attached to your womb. Actually, it is the excess oestrogen which causes them to grow.

I recently found out that my fibroids have grown– they’ve grown bigger and they’ve grown in number. The biggest ones are around 6cm now. That’s the size of a tennis ball.


My womb, which should be about the size of a pear, and reach up to about normal bikini line, is now up to my belly button. The size it would be at 20 weeks in to a pregnancy. And the tennis ball tumours and their golf ball sized buddies are filling the right hand side of my lower abdomen, displacing and squashing the things that should be there. Like my intestines and bladder.

Fibroids are…

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